Saturday, April 26, 2014

Effects of corticosteroid Tricort

I had been having trouble breathing all week since starting the steroid spray.  He told me to use it 4 times a day.  The instructions said no more than twice a day.  So on Monday, I started it with twice a day.  I used it Monday, developed a cough.  I used it Tuesday and noticed some wheezing and tightness in my chest.  I started stepping down from it on Wednesday because I was not liking what was happening.  I used it once on Wednesday and once on Thursday morning.  By noon on Thursday, I was developing more tightness and wheezing.  By Thursday night, I knew I was in trouble.  I had popped on water retention to the tune of 10 pounds.  I could not get enough air to my lungs.  I had a headache and I was scared.  I was so scared, wrote my son a set of instructions on what to do if I died.  I set a text message to send to him with instructions to call an ambulance.  I left my door unlocked.  I sat up all night because I was afraid to lie down.  I was afraid to go to the ER because of what the doctors had already done to me.

Well, I made it through the night.  All day Friday, I was so weak, exhausted, back ache and still short of breath and wheezing,. but better.  So, I had already called the doctor on Wednesday and told him I was getting off the spray.  Well, his office called me on Friday.  Could I come in Monday morning to get an oral steroid prescription.  I told her what had happened and her answer was, "Well, the doctor is gone today, but come in Monday."  Yeah.  It is now Saturday night and I am finally able to walk through the room without stopping to fight for breath.  Most of the bloating is gone.  But I am so tired.  And I have had a headache all day.  Needless  to say, I will not be trusting these docs again.  I think the dermatologist was using me for a test subject to see how the Topicort would react.  Common sense thing to have done both for the internist and the dermatologist was to have given me a prescription for an oral steroid.  My arms are no longer swollen, but they look like someone has been at them with an ice pick.  It will take a good month to get them back in shape.  But at least I am alive to do it.

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