I had been having trouble breathing all week since starting the steroid spray. He told me to use it 4 times a day. The instructions said no more than twice a day. So on Monday, I started it with twice a day. I used it Monday, developed a cough. I used it Tuesday and noticed some wheezing and tightness in my chest. I started stepping down from it on Wednesday because I was not liking what was happening. I used it once on Wednesday and once on Thursday morning. By noon on Thursday, I was developing more tightness and wheezing. By Thursday night, I knew I was in trouble. I had popped on water retention to the tune of 10 pounds. I could not get enough air to my lungs. I had a headache and I was scared. I was so scared, wrote my son a set of instructions on what to do if I died. I set a text message to send to him with instructions to call an ambulance. I left my door unlocked. I sat up all night because I was afraid to lie down. I was afraid to go to the ER because of what the doctors had already done to me.
Well, I made it through the night. All day Friday, I was so weak, exhausted, back ache and still short of breath and wheezing,. but better. So, I had already called the doctor on Wednesday and told him I was getting off the spray. Well, his office called me on Friday. Could I come in Monday morning to get an oral steroid prescription. I told her what had happened and her answer was, "Well, the doctor is gone today, but come in Monday." Yeah. It is now Saturday night and I am finally able to walk through the room without stopping to fight for breath. Most of the bloating is gone. But I am so tired. And I have had a headache all day. Needless to say, I will not be trusting these docs again. I think the dermatologist was using me for a test subject to see how the Topicort would react. Common sense thing to have done both for the internist and the dermatologist was to have given me a prescription for an oral steroid. My arms are no longer swollen, but they look like someone has been at them with an ice pick. It will take a good month to get them back in shape. But at least I am alive to do it.
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